For the past many years since my stroke, I have worn an AFO (ankle foot orthotic) to help me walk. It is big, plastic, and custom fit to my foot and calf. It has required wearing shoes big enough to accommodate its width and means that all of my shoes have been too big and wide. Men's shoes have often been the best fit. Needless to say, I have hated shoe shopping for the past five years, and the only pair of shoes I've even liked a bit has been a pair of gray men's Converse One Stars. After a year, they are beat up, falling apart, and have been what I jokingly called Sunday school shoes.
Until a few weeks ago.
My neurologist suggested that I look into device called the Bioness L300--an electrical stimulation cuff that is worn around the calf and under the knee on the affected leg (my left). It uses electric shock to trigger the muscles that lift the foot and toes at the right moment in gait to facilitate walking. It is an alternative to wearing an AFO and allows the user to wear regular shoes as long as they have a back to hold the heel in place. No flip flops. The electrical stimulation helps establish neural pathways from the brain to, and some users are able to walk independently in time with no gait device at all.
I visited the company's website and requested their informationalDVD for the Ness L300 foot drop system. It is very cool. If you visit the website or look up the Bioness L300 on You Tube, you can see clearly what it is and how it works. When Bioness contacted me directly to follow up, we scheduled an evaluation and trial, tried one, and saw immediate results. We received purchasing information, decided it was a big decision because of thee price tag, and spent a few weeks thinking about it.
On Christmas morning, I opened an envelope from Dad, and discovered that Bioness was offering us a deal that made it more affordable if I wanted it. It didn't take me long to decide that wearing normal shoes without a clunky brace sounded like a really great idea! After the package arrived, the Bioness rep came back to Denver and calibrated my device to work just right for me and how I walk.
I wore a pair of Mom's shoes the first day since all of the shoes I had are far too big without my brace. She and I went to DSW and had more fun than we have ever had in a shoe store. We came home with five new pairs of shoes for me!
I wear a control unit around my neck that communicates with the cuff and the weight sensor in my left shoe, as well as the gait sensor attached to the shoe itself. It looks normal and can be worn under all of my clothes without being too noticeable. Then off I go!No cane, no brace, just me (in new shoes!).
I am still working on having a normal gait with more even, smooth steps and less of a jerky limp thing going on. Friends joke that I should make the bionic sounds like the TV character, but I am hoping to blend into the world around me more subtly than that for now.I would include photos and video here for you, but I haven't done that in so long that I'm not sure I remember how...
In other news, we leave onMonday to spend some time in Arizona like we did last year. We are so over winter! The mid-80s are sounding really good!
So. Stinkin'. Awesome. Love you bunches!
Sooz
Posted by: Susan | February 24, 2016 at 11:42 AM
So excited for you
Posted by: Nancy | February 24, 2016 at 11:57 AM
Fantastic news! You go girl!
Posted by: Wendy | February 24, 2016 at 12:35 PM
I. Love. This. You, my friend, inspire me!! 💞💞
Posted by: Rebecca | February 24, 2016 at 12:37 PM
So happy for you!!! I remember your love of shoes and have mourned this for you. Praising God for this technology.
Posted by: Christa | February 24, 2016 at 12:51 PM
Ive never met you but I had tears in my eyes reading this. Your story is one of hope and joy and it is a blessing and privilege to feel like a "friend" over the last few years through your blog.
You are remarkable. I will continue to pray for God's blessings over your life.
Posted by: Beth Dykhuizen | February 24, 2016 at 02:31 PM
I have read your blog ever since your stroke. Don't remember how I found it, but you continue to amaze me.
Posted by: Phyllis | February 24, 2016 at 02:50 PM
Oh, Joanne, this is such awesome news! It has me in happy tears! I can't marine how much difference this is making in your self-esteem as well as in your everyday-life-journey! You have endured so MUCH, and once again, GOD is SO FAITHFUL! I am just praising HIM and feel such gratitude to HIM and to the company that helped make this REALLY BIG DEAL POSSIBLE!
Posted by: Diana Brasher | February 24, 2016 at 02:52 PM
This is awesome! Go technology. I hope one of your new pairs of shoes is red. Love you friend. Enjoy the sun!
Posted by: wendy | February 24, 2016 at 04:34 PM
I can't wait to see it in action. How wonderful it must feel to wear shoes you like. I'm glad it worked out to get one.
Posted by: Jill | February 24, 2016 at 04:56 PM
You are one step ahead and your popping now....
Posted by: Rena | February 24, 2016 at 05:04 PM
So happy for you! You are a miracle and our God is good.
Posted by: Kathy Hutchinson | February 24, 2016 at 05:21 PM
This is such incredible news! We better see pics of every shoe shopping trip henceforth!!!
Posted by: Dawn Welch | February 24, 2016 at 05:37 PM
I am so happy for you.
Posted by: Deidra | February 24, 2016 at 05:41 PM
So exciting. Saw your show pictures on Facebook so had to come look for an update on your blog. :)
Posted by: Jenni Saake, InfertilityMom and StrokeOfGrace | February 24, 2016 at 09:52 PM
I am so excited to hear about your five new pairs of shoes, but more importantly the 'normalness' that technology is bringing to your life. You continue to breath His words in my life by sharing yours. Thank you.
Posted by: Kristi Lonheim | February 24, 2016 at 11:11 PM
So happy for you! Have fun in Arizona and enjoy that warm weather!
Posted by: Sheila Hinkle | February 25, 2016 at 12:17 AM
I saw your shoes on Facebook & they're awesome! I'm so excited for you even though we've never met!!! Enjoy the AZ warmth! Blessings to you, you amazing inspiration to the world!
Posted by: Karen Hicks | February 25, 2016 at 12:02 PM
Thumbs up all around! Please tell the Open Door folks hi from Kerri B :)
Posted by: Kerri B | February 25, 2016 at 04:15 PM
fantastic!
Posted by: renee altson | February 25, 2016 at 11:15 PM
This is great news! I am so glad it worked out for you to have the device.
Posted by: LadyEdithCrawleyPelham | February 26, 2016 at 08:48 AM